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Summary
Summary
A Palliative Care Book of the Month: IAHPC (International Association for Hospice and Palliative Care)
From a medical insider comes a plea to renew medicine's mandate to relieve suffering. The philosophy and practice of palliative care shows how this is possible by easing pain, by embracing the human side of illness, by inviting patients to be full participants in their care, and by incorporating the wisdom of these injured storytellers to guide healing hands. Informed by the voices of the seriously ill, their families, and the lifelong experience of a palliative care nurse and medical social worker, Stay, Breathe with Me , illuminates the power of the art of care and the need to bring heart and compassion back into health care. Written for both medical professionals and general readers alike.
Reviews (1)
Library Journal Review
One might consider the practice of modern medicine to be both art and science. Synonymous with the term hospice care, palliative care emphasizes the artistic side of medical treatment. In this title, Helen Allison (head writer, Social Work Services as a Component of Palliative Care with Terminal Cancer Patients) looks back on her years nursing terminally ill people in order to develop an awareness of the importance of palliative care. She and her coauthor daughter Irene demonstrate the need for patients to be active participants in their care, to retain their dignity and self-worth, and to remain connected with family and loved ones. Besides physical pain, a person under palliative care experiences emotional discomfort as well. Therefore, Allison makes it clear that hope and compassion should always be present. Unfortunately, many medical practitioners are not trained in palliation. Others become more focused on the science rather than the art of the field. Allison recounts scenarios that exemplify both best and worst practices, making a strong case for palliative care through clear and descriptive language. -VERDICT Medical professionals can use Allison's experience to enhance their understanding of palliative care, while caregivers will be encouraged to provide a noble service.-Chad Clark, San Jacinto Coll. Dist., Pasadena, TX © Copyright 2016. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.
Table of Contents
Foreword | p. xvii |
The Gift of Compassionate Medicine | p. 1 |
"All I ask is to be heard and understood" | p. 9 |
The Person Left Behind | p. 9 |
"Who will walk my way?" | p. 11 |
Humanitarian Principles of Palliative Care | p. 13 |
The Management of Advanced Cancer Pain | p. 13 |
Art and Science | p. 15 |
Children in Need of Palliative Care | p. 19 |
Anatomical Puppets in the Art of Care | p. 21 |
The Anguish of Childhood Awareness | p. 23 |
Extended Family Members at Dunira | p. 24 |
A Child in Crisis | p. 25 |
Wisdom Shared: Dave's Story | p. 29 |
Silence without Meaning | p. 29 |
Institutional Care | p. 32 |
Communication Breakdown and Paternalism | p. 33 |
The Negation of Suffering | p. 36 |
Paul's Journey | p. 43 |
Who Will Understand? | p. 46 |
Paul's Discovery | p. 48 |
Dunira Hospice: Rite of Passage | p. 51 |
Palliative Care Services Reviewed | p. 55 |
Mrs. Lambie, Person Unknown | p. 58 |
The Hospice Team Searches for Answers | p. 59 |
"An Ancient Longhouse" | p. 65 |
Caring Comradeship and Harmony | p. 66 |
A Wedding at Dunira | p. 70 |
"Why does the night nurse wake me for my medicine?" | p. 73 |
Angle's Pain Assessment | p. 74 |
Emotional Pain | p. 76 |
Patient Rights | p. 77 |
Protecting Angie | p. 81 |
Jock, Brian, and the Sea Captain | p. 85 |
The Joy of Camaraderie | p. 86 |
Seafaring Stories | p. 87 |
"Pain as big as the universe" | p. 91 |
A Vietnamese Family at Dunira | p. 91 |
Minh, a Boy Made Old Before His Time | p. 92 |
A Committed Hospice Team | p. 94 |
Wayne's Fears: "Are you the worker that deals with death?" | p. 97 |
Illness, Isolation, and Fear | p. 99 |
In Need of Humanitarian Care | p. 100 |
When Good Intentions Fail | p. 103 |
John Steele's Story | p. 105 |
Blocked Communication | p. 108 |
A Family in Pain | p. 108 |
Loss of Independence and Choices Removed | p. 109 |
Resignation and Capitulation | p. 111 |
The Exacerbation of Suffering | p. 112 |
The Story of Seumas | p. 113 |
Dr. Ethic's Honorable Intentions | p. 115 |
A Family Affair | p. 119 |
Alfredo's Story | p. 120 |
Sofia's Dilemma | p. 123 |
Acute Patient Care is Not Palliation | p. 125 |
"Pain Is What the Patient Says It Is" | p. 126 |
The Need For Awareness and Learning | p. 131 |
Hide and Seek | p. 132 |
Medical Myths | p. 133 |
Symptom Control | p. 134 |
Whose Needs Are Met? | p. 137 |
Palliative Home Care | p. 138 |
Respite Hospice Care | p. 138 |
Altruism at Dunira | p. 141 |
Patient Vigils | p. 141 |
Olga's Appeal for Help | p. 142 |
Mount Pleasant | p. 147 |
Death Denial | p. 148 |
Conspiracy of Silence | p. 149 |
Grief and Loss | p. 149 |
Breaking through Silence | p. 151 |
Rituals Enable Us to Frame Our Lives | p. 153 |
Through the Camera Lens: Emma | p. 155 |
A Pristine Wintry Scene | p. 159 |
Miracles Sometimes Happen | p. 160 |
Lives in Progress | p. 163 |
Vladie's Gift of Sharing | p. 163 |
Jessies Independence | p. 164 |
Mother Is Unsinkable | p. 165 |
Poinsettias in Profusion | p. 171 |
A Forum for Palliative Care | p. 173 |
Interdependent Relationships: Heather | p. 179 |
Suffering Identified | p. 182 |
Surgical Injury of the Brain | p. 183 |
Unmet Expectations | p. 185 |
"Mind Is the Master Power": Dora | p. 189 |
A Hundred Thousand Ills | p. 190 |
Building a Bridge to Reach Dora | p. 191 |
"Detached Compassion": Geraldine | p. 195 |
Geraldine's Intractable Pain | p. 196 |
A Grieving Hospice Team | p. 198 |
The Stone Thrower | p. 199 |
An Unusual Experience | p. 200 |
"Have we lost our sense of humor?" | p. 202 |
A Time of Good Cheer | p. 204 |
The Coming of Spring | p. 209 |
Violet's Anguish | p. 209 |
Harry and Mabel's Acceptance | p. 214 |
A Catalog of Labels | p. 219 |
Meg's Story | p. 219 |
Roberta's Story | p. 222 |
"Roberta, Are You Hiding?" | p. 223 |
Trust Bestowed | p. 225 |
"Miracles" of Technology | p. 229 |
Social Dilemmas | p. 231 |
Euthanasia and Physician-Assisted Dying | p. 232 |
Advance Health Care Directive: The Living Will | p. 237 |
Neil's Palliative Passport to Freedom | p. 238 |
Hope Beyond Despair: Victims of Injury | p. 241 |
"Stay, Breathe with Me" | p. 245 |
For Patients | p. 253 |
References | p. 257 |
With Gratitude | p. 261 |