About this item

"A riveting scientific detective story" (The Washington Post) by two Pulitzer Prize-winning journalists who chronicle a young Wisconsin boy with a never-before-seen disease and the doctors who save his life by taking a new step into the future of medicine.In this landmark medical narrative, Pulitzer Prize-winning journalists Mark Johnson and Kathleen Gallagher share the story of Nic Volker, the first patient to be saved by a bold breakthrough in medicine - a complete gene sequencing, aimed at finding the cause of an otherwise undiagnosable illness. At just two years old, Nic experienced a brief flicker of pain that signaled the awakening of a new and deadly disease, one that would hurl him and his family into a harrowing journey in search for a lifesaving cure.



About the Author

Mark Johnson

Mark Johnson is a sportswriter and sports photographer. He has covered cycling and endurance sports since the 1980s. His work often focuses on the business of pro cycling - a topic that frequently intersects with the sport's long history of doping. Along with U.S. publications like VeloNews, his work is published in Cycling Weekly in the UK, Velo in France, Ride Cycling Review in Australia as well as general-interest publications including the Washington Post and Wall Street Journal.

VeloPress published Johnson's book, Argyle Armada: Behind the Scenes of the Pro Cycling Life, a documentary in words and photos of a year with the Garmin-Cervélo professional cycling team. Mark has bicycled across the United States twice and completed an Ironman triathlon. A graduate of the University of California, San Diego, the author also has an MA and PhD in English Literature from Boston University. Learn more at ironstring.com



Read Next Recommendation

Report incorrect product information.