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How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes

Hidden from consumers, patient medical data has become a multibillion-dollar worldwide trade between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of our prescriptions, hospital records, insurance claims, blood-test results, and more, stripped of names but still containing identifiers such as year of birth, gender, and doctor's name. As computing grows ever more sophisticated, these patient dossiers are increasingly vulnerable to re-identification, which could make them a target for identity thieves or hackers.

Paradoxically, comprehensive electronic files for patient treatment - a key reason medical data exists in the first place - remain an elusive goal. Even today, patients and their doctors rarely have easy access to full records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book reveals the previously hidden story of how such a system evolved internationally.

This investigative narrative seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives, while preserving the rights and interests of every patients. We, the patients, deserve a say in this discussion. After all, it's our data.



About the Author

Adam Tanner

Adam Tanner is one of America's leading experts on privacy and the commercialization of personal information. He is the author of "What Stays in Vegas: The World of Personal Data-Lifeblood of Big Business-and the End of Privacy as We Know It" (named by the Washington Post as one of 50 notable works of non-fiction in 2014) and "Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records" (Jan. 2017) .

He is Writer in Residence at Harvard University's Institute for Quantitative Social Science and the 2016-17 C.W. Snedden Chair in Journalism at the University of Alaska Fairbanks.
 
He served as a Reuters news agency correspondent from 1995-2011, including as bureau chief for the Balkans (2008-2011) , San Francisco bureau chief (2003-2008) , and correspondent in Berlin, Moscow and Washington D.C. He has appeared on CNN, Bloomberg TV, MSNBC, CNBC, NPR, the BBC and VOA, written for magazines including Scientific American, Forbes, Fortune, Time, MIT Technology Review and Slate, and lectured across the United States and in Canada, Britain, the Netherlands, Germany, Hong Kong, Macao, Indonesia, Thailand, Singapore, Japan, and India.



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